One of the main focuses of Ragdolls UK in 2016 has been the building of support groups as far and wide as possible. Main cities such as Aberdeen, Dundee, Glasgow and Edinburgh have been the targets in Scotland as well as sights being set on England and further.
A PLACE OF SUPPORT
What do Ragdolls UK feel is the need for support groups? What do they offer? First and foremost they are a place where girls with Turner’s Syndrome can meet others the same. It is also a place where the families and friends of those sufferers can share their experiences and help each other learn how to help their child, family member or friend live as full a life as possible.
Being diagnosed with a genetic disorder can be frightening. It leaves a lot of information to try and get your head round. The Ragdolls UK support groups mean that you can talk to people who are going through the same thing. They can offer you advice in a comforting environment away from the doctor’s office.
SOCIAL OPPORTUNITIES
Having a member of your family with a genetic disorder often inclines people towards wrapping them up in cotton wool. As caring and supportive gesture as this can be it sometimes means that the sufferer gets very little opportunity to socialise with their peers. The Ragdolls UK support groups means being able to meet interesting, colourful and loving individuals from all walks of life. More often than not they make life long friends. The social nights and days out help with this.
RELAX
It can be overwhelming when a family member has a genetic disorder. Some mean that extra care is required and the carer can often forget to look after themselves. The Ragdolls UK support groups means that you can sit back, have a coffee and relax.
For information on support groups for Turner’s Syndrome girls in your area contact ragdolls.uk@gmail.com
or visit http://www.ragdollscharity.uk for more information
