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TS and gender

There has been a lot of discussion lately about TS and it only occurring in females. The National Organisation for Rare Disorders describes, “Only females are affected by Turner syndrome,…

Join our groups

We are pleased to be looking at in person support/ friendship groups for those with Turner's Syndrome or their families. We are here to offer support in whichever way we…

The Big Question by Alison Harvey

As TS women we face a lot of extra challenges. There are often a host of specialists to see, health checks to make and rights we have to advocate. It's…

Ragdolls UK Projects

To tell a story

21 Mar 202321 Mar 2023

As part of our pledge to support TS girls and their families achieve their full potential we are currently working with the lovely Annelie N in compiling a book on…

Taken Seriously by Tracey Connelly

Talking to a group of young TS women lately there was an issue raised that I believe is worth opening for discussion. There was a consensus within the group that…

million steps challenge

The new year brings new horizons and with that in mind we are looking to make this year the best yet. With that in mind we are excited to have…

That which is worth having by Annelie N

If we should fail, then not for lack of trying, Never shall it be said of us that we, Gave any less than everything We could have given,You and me.…

Turner’s Syndrome and mental health by Hayley Watson

In our modern day and age the issue of mental health has come more the forefront. As we fight to eliminate the stigma surrounding it more and more discussions are…

At Risk by Annelie N

… Is every one of us,And diagnosed as terminal the instant we are born, Few tough realize their fate,Few of us can cope,With reading in their cards,Of risks and doom…

Women and Ageing: Why we don’t talkabout it often? by Jyoti Upadhyay

Whenever I come across the discussion/ debate on women and ageing, suddenly my memories take me back to my maternal grandmother’s image. She was the first woman I had known…

The Road is Never-Ending by Jyoti Upadhyay

Written 23/7/2019 I am pedaling till my last breath,To Reach my destiny;After a while I took a pause, to dry my sweat;But, everyone is running towards their destiny,And I too started pedaling again,But,…

When you know you know by Tracey Connelly

21 Jan 202224 Jan 2022

I was thirteen years old. I was a gocky young teen who preferred to read books than put on makeup and dress up. However, like all other young kids who…

Going Live! By Tracey Connelly

I hope you are all having a wonderful 2022 so far and I would just like to take a moment to thank everyone who has supported us through some of…

Play to your strengths by Annelie N

When I was younger, I wanted nothing more than to be able to run as fast as my sister, play volleyball as well as she could, to play the piano…

A Day that Changes Our World by Annelie N

11 Oct 202128 Nov 2021

Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…

Fundraising to support girl children with Turner’s syndrome by Avijita Kharel

12 May 202112 May 2021

I am a person who loves all forms of life. I have huge concern for social issues. I do my best to be mindful of my own impact in the…

Chatting TS with Ellen Dingizian

A while back I had the opportunity to have a chat with a lovely TS sister, Ellen. It was such a great experience being able to share our stories, discuss…

My TS Story by Chanelle Pepin

27 Aug 20201 Sep 2020

My Turner Syndrome Story. My diagnosis I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…

Body Image in Turner’s Syndrome

Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…

The I word by Tracey Connelly

24 Jan 202024 Jan 2020

It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…