Vivika Widow – Welcome to the Ragdolls UK Charity Blog

My TS Story by Chanelle Pepin

27 Aug 20201 Sep 2020

My Turner Syndrome Story. My diagnosis I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…

Body Image in Turner’s Syndrome

Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…

The I word by Tracey Connelly

24 Jan 202024 Jan 2020

It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…

Do You (Really) Know Me? by Tracey Connelly

17 Sep 201917 Sep 2019

"You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…

Reading Expressions (NVLD in Turner’s Syndrome)

22 Aug 201922 Aug 2019

Non verbal learning disorder (NVLD) in girls and women with Turner's Syndrome can be a pressing issue, especially in today's fast past paced world where interaction is key and interactions…

My TS Story – Tracey Connelly

26 Mar 201926 Mar 2019

Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…

1 of 70,000 by Kaitlyn Mena

27 Feb 201927 Feb 2019

When I read that number I almost cried. Sure I have known Turner’s Syndrome was rare but this was a wake-up call for sure. There are almost as many Hispanic…

We are our a own Normal by Nicole Hawley

1 Jan 20191 Jan 2019

Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…

You Will Still Be Here Tomorrow, But Your Dreams May Not, Pt. 2 by Nicole Hawley

I was the kind of kid who would sit in my room and read the encyclopedia for fun. I know, I was quite the nerd. But, reading the encyclopedia changed…

A little support makes a huge difference!

Have you heard of Turner's Syndrome? It occurs in 1 in about 2500 girls and women across the world and yet there are still many who haven't heard of it.…

Turner’s Syndrome 101 by Patricia Woods

12 Jul 201812 Jul 2018

What is a genetic disorder? Well each of us are made of a unique combination of DNA molecules which in turn determines lots of things about us like hair colour,…

Ragdolls UK Projects

Who’s On The Line? By Marion Kirkwood

24 Apr 201824 Apr 2018

We are a small charity and as such we only have so many people on hand to help. What Ragdolls UK does have to offer are a hard working team…

What is Turner’s Syndrome (A Handy Video Guide)

21 Mar 201821 Mar 2018

For every girl and woman with Turner's Syndrome we support there are several more across the world who have never heard of the condition. Despite occurring in about 1 in…

A World of Information

6 Mar 20186 Mar 2018

We are gifted with being able to find out a whole host of information at our finger tips and yet despite the speed of this information high way there are…

Ragdolls UK Projects…

Happy New Year from Ragdolls UK

3 Jan 20183 Jan 2018

The new year is an exciting time for us because it gives us the opportunity to look ahead and start working towards any fundraising events we may have throughout the…

Turner’s Syndrome and Us; by Racheal Chapman

t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…

Too Many Chromosomes Spoil the Broth; by Faye Price

12 Oct 201712 Oct 2017

This can certainly be the case for a minority of unborn babies. Whilst many of our womb bound children are tucked away fully formed, developing that much – loved ability…

Wilson’s Disease: When Copper is the Culprit; by Tetyana Pravytska

9 Oct 20179 Oct 2017

Copper is a naturally occurring element and can be found in various diets. Chocolate, liver, nuts and shellfish contain it in abundance. A great amount of copper in certain foods…

Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska

6 Oct 20176 Oct 2017

In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave birth to her much wanted son. Her happiness faded away very soon…

Autism Spectrum Disorder and Dance Therapy; by Katerina Vasakou

5 Oct 20175 Oct 2017

Body movement therapy approaches support the view that the non-verbal interaction components and body mechanisms of people with autism should be taken strongly into consideration when working in therapeutic and…