Vivika Widow – Welcome to the Ragdolls UK Charity Blog

The Road is Never-Ending by Jyoti Upadhyay

Written 23/7/2019 I am pedaling till my last breath,To Reach my destiny;After a while I took a pause, to dry my sweat;But, everyone is running towards their destiny,And I too started pedaling again,But,…

When you know you know by Tracey Connelly

21 Jan 202224 Jan 2022

I was thirteen years old. I was a gocky young teen who preferred to read books than put on makeup and dress up. However, like all other young kids who…

Going Live! By Tracey Connelly

I hope you are all having a wonderful 2022 so far and I would just like to take a moment to thank everyone who has supported us through some of…

Play to your strengths by Annelie N

When I was younger, I wanted nothing more than to be able to run as fast as my sister, play volleyball as well as she could, to play the piano…

A Day that Changes Our World by Annelie N

11 Oct 202128 Nov 2021

Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…

Fundraising to support girl children with Turner’s syndrome by Avijita Kharel

12 May 202112 May 2021

I am a person who loves all forms of life. I have huge concern for social issues. I do my best to be mindful of my own impact in the…

Chatting TS with Ellen Dingizian

A while back I had the opportunity to have a chat with a lovely TS sister, Ellen. It was such a great experience being able to share our stories, discuss…

My TS Story by Chanelle Pepin

27 Aug 20201 Sep 2020

My Turner Syndrome Story. My diagnosis I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…

Body Image in Turner’s Syndrome

Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…

The I word by Tracey Connelly

24 Jan 202024 Jan 2020

It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…

Do You (Really) Know Me? by Tracey Connelly

17 Sep 201917 Sep 2019

"You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…

Reading Expressions (NVLD in Turner’s Syndrome)

22 Aug 201922 Aug 2019

Non verbal learning disorder (NVLD) in girls and women with Turner's Syndrome can be a pressing issue, especially in today's fast past paced world where interaction is key and interactions…

My TS Story – Tracey Connelly

26 Mar 201926 Mar 2019

Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…

1 of 70,000 by Kaitlyn Mena

27 Feb 201927 Feb 2019

When I read that number I almost cried. Sure I have known Turner’s Syndrome was rare but this was a wake-up call for sure. There are almost as many Hispanic…

We are our a own Normal by Nicole Hawley

1 Jan 20191 Jan 2019

Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…

You Will Still Be Here Tomorrow, But Your Dreams May Not, Pt. 2 by Nicole Hawley

I was the kind of kid who would sit in my room and read the encyclopedia for fun. I know, I was quite the nerd. But, reading the encyclopedia changed…

A little support makes a huge difference!

Have you heard of Turner's Syndrome? It occurs in 1 in about 2500 girls and women across the world and yet there are still many who haven't heard of it.…

Turner’s Syndrome 101 by Patricia Woods

12 Jul 201812 Jul 2018

What is a genetic disorder? Well each of us are made of a unique combination of DNA molecules which in turn determines lots of things about us like hair colour,…

Ragdolls UK Projects

Who’s On The Line? By Marion Kirkwood

24 Apr 201824 Apr 2018

We are a small charity and as such we only have so many people on hand to help. What Ragdolls UK does have to offer are a hard working team…

What is Turner’s Syndrome (A Handy Video Guide)

21 Mar 201821 Mar 2018

For every girl and woman with Turner's Syndrome we support there are several more across the world who have never heard of the condition. Despite occurring in about 1 in…