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Welcome to the Ragdolls UK Charity Blog

Welcome to the Ragdolls UK Charity Blog

Helping girls with Turner's Syndrome achieve their full potential.

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Category: Awareness

Awareness…

Taken Seriously by Tracey Connelly

14 Mar 2023
Talking to a group of young TS women lately there was an issue raised that I believe is worth opening for discussion. There was a consensus within the group that…
Awareness

Turner’s Syndrome and mental health by Hayley Watson

22 Nov 2022
In our modern day and age the issue of mental health has come more the forefront. As we fight to eliminate the stigma surrounding it more and more discussions are…
Awareness

When you know you know by Tracey Connelly

21 Jan 202224 Jan 2022
I was thirteen years old. I was a gocky young teen who preferred to read books than put on makeup and dress up. However, like all other young kids who…
Awareness

Play to your strengths by Annelie N

30 Nov 2021
When I was younger, I wanted nothing more than to be able to run as fast as my sister, play volleyball as well as she could, to play the piano…
Awareness…

A Day that Changes Our World by Annelie N

11 Oct 202128 Nov 2021
Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…
Awareness

Chatting TS with Ellen Dingizian

30 Mar 2021
A while back I had the opportunity to have a chat with a lovely TS sister, Ellen. It was such a great experience being able to share our stories, discuss…
Awareness

My TS Story by Chanelle Pepin

27 Aug 20201 Sep 2020
My Turner Syndrome Story.   My diagnosis  I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories

Body Image in Turner’s Syndrome

17 Mar 2020
Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness…

The I word by Tracey Connelly

24 Jan 202024 Jan 2020
It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…
Awareness…

Do You (Really) Know Me? by Tracey Connelly

17 Sep 201917 Sep 2019
"You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness…

Reading Expressions (NVLD in Turner’s Syndrome)

22 Aug 201922 Aug 2019
Non verbal learning disorder (NVLD) in girls and women with Turner's Syndrome can be a pressing issue, especially in today's fast past paced world where interaction is key and interactions…
Awareness…

My TS Story – Tracey Connelly

26 Mar 201926 Mar 2019
Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Awareness

1 of 70,000 by Kaitlyn Mena

27 Feb 201927 Feb 2019
When I read that number I almost cried. Sure I have known Turner’s Syndrome was rare but this was a wake-up call for sure. There are almost as many Hispanic…
Awareness…

A little support makes a huge difference!

21 Aug 2018
Have you heard of Turner's Syndrome? It occurs in 1 in about 2500 girls and women across the world and yet there are still many who haven't heard of it.…
Awareness…

What is Turner’s Syndrome (A Handy Video Guide)

21 Mar 201821 Mar 2018
For every girl and woman with Turner's Syndrome we support there are several more across the world who have never heard of the condition. Despite occurring in about 1 in…
Awareness

A World of Information

6 Mar 20186 Mar 2018
We are gifted with being able to find out a whole host of information at our finger tips and yet despite the speed of this information high way there are…
Awareness…

Turner’s Syndrome and Us; by Racheal Chapman

16 Oct 2017
t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness…

Too Many Chromosomes Spoil the Broth; by Faye Price

12 Oct 201712 Oct 2017
This can certainly be the case for a minority of unborn babies. Whilst many of our womb bound children are tucked away fully formed, developing that much – loved ability…
Awareness…

Wilson’s Disease: When Copper is the Culprit; by Tetyana Pravytska

9 Oct 20179 Oct 2017
Copper is a naturally occurring element and can be found in various diets. Chocolate, liver, nuts and shellfish contain it in abundance. A great amount of copper in certain foods…
Awareness…

Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska

6 Oct 20176 Oct 2017
In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave  birth to her much wanted son. Her happiness faded away very soon…

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