Welcome to the Ragdolls UK Charity Blog – Page 2 – Helping girls with Turner's Syndrome achieve their full potential.

A word from our friends!

Volunteering with Ragdolls UK is a wonderful opportunity. Not only do you help those who need support but also share the knowledge and experiences with others about this wonderful, ongoing work.

Emily Toland (Glasgow)

The great work that Ragdolls UK do has provided hope for thousands across the UK who have Turner’s Syndrome as well as their families.

Jenna Waithe (Clydebank)

Turner’s Syndrome and Us; by Racheal Chapman

t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…

Too Many Chromosomes Spoil the Broth; by Faye Price

12 Oct 201712 Oct 2017

This can certainly be the case for a minority of unborn babies. Whilst many of our womb bound children are tucked away fully formed, developing that much – loved ability…

Wilson’s Disease: When Copper is the Culprit; by Tetyana Pravytska

9 Oct 20179 Oct 2017

Copper is a naturally occurring element and can be found in various diets. Chocolate, liver, nuts and shellfish contain it in abundance. A great amount of copper in certain foods…

Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska

6 Oct 20176 Oct 2017

In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave birth to her much wanted son. Her happiness faded away very soon…

Autism Spectrum Disorder and Dance Therapy; by Katerina Vasakou

5 Oct 20175 Oct 2017

Body movement therapy approaches support the view that the non-verbal interaction components and body mechanisms of people with autism should be taken strongly into consideration when working in therapeutic and…

Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska

Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…

Pet Therapy; by Tetyana Pravytska

Although the great assistance of animals is known for centuries, animal- assisted interventions have not received enough attention from researchers. Even as the number of studies grow, showing therapeutic potential…

Spotlight on Genetic Disorders

Spotlight on Cystic Fibrosis; by Alisha Malik

27 Sep 201727 Sep 2017

Genetic disorders can be caused when a mutation (a random and spontaneous change in the structure of a gene) occurs in a single gene. However, most of these mutations can…

Spotlight on Osteoperosis Imperfecta; by Gemma Bryant

26 Sep 201726 Sep 2017

I was inspired to write this article as a result of realising that if it were not for a couple of friends who happen to have osteogenesis imperfecta (OI), I…

Let’s tell the World!

14 Sep 201726 Sep 2017

When Ragdolls UK was founded we made it our mission to bring awareness of Turner's Syndrome to as many people as we could. It is a condition that occurs in…

Ragdolls UK Projects…

TS Girls Unite; By Tracey Connelly

28 Aug 201726 Sep 2017

I was having a chat recently with Kriss Fearnon of De Montfort University who is conducting research with TS girls and their reproductive decisions. This is one of the most…

Getting the Info you Need: By Anne Lilt

1 Aug 201726 Sep 2017

We are so pleased to see our website up and running with some new changes. We hope you can take the time to check it out. The site features some…

Ragdolls UK Projects…

Small but Mighty; by Tracey Connelly

24 Jul 201726 Sep 2017

When businesses are built from the ground up it can be a difficult and trying journey. When it is a charity the odds you are up against can be near…

Ragdolls UK Projects

Helping Turner’s Syndrome girls achieve their full potential

27 Jun 201726 Sep 2017

Carrying a genetic disorder can be a scary experience. It can leave the sufferer feeling isolated and lonely. We at Ragdolls UK know this only too well and strive to…

Turner’s Syndrome and rare diseases; By Alisha Malik

20 Jun 201726 Sep 2017

1 in 3 young children with rare and genetic diseases will not live to see their 5th birthday. (REF: globalgenes.org) 5 babies are born with Cystic Fibrosis and 2 sufferer…

TS and reproductive decisions; Kriss Fearnon

6 Jun 201726 Sep 2017

My name is Kriss Fearon and I’m based at the Centre for Reproduction Research at De Montfort University in Leicester. My research is about reproductive decision making in the context…

GoRaise and help Ragdolls UK; by Edita Collins

5 Jun 201726 Sep 2017

Fundraising nowadays requires a lot of thought, effort and determination. Few people enjoy being stopped in the street and asked for charitable donations. We believe that everyone should feel good…

A message of Hope; by Anna J

9 May 20176 Jun 2017

Our mission is to help as many girls with Turner's Syndrome as possible by linking them to the support they need. Whilst there is some help out their for parents…

The Turner’s Syndrome Health Check

21 Mar 201721 Mar 2017

Being a Turner's girl means that it is a must that you keep a regular check on your heart, kidneys and reproductive system throughout your life. It's not pretty but…

The Blog that Could; by Tracey Connelly

20 Mar 20176 Jun 2017

Ragdolls UK set out to bring comfort, encouragement and up to date relevant information to those who suffer from genetic disorders. A huge part of this is by keeping our…