Welcome to the Ragdolls UK Charity Blog – Page 2 – Helping girls with Turner's Syndrome achieve their full potential.

A word from our friends!

Volunteering with Ragdolls UK is a wonderful opportunity. Not only do you help those who need support but also share the knowledge and experiences with others about this wonderful, ongoing work.

Emily Toland (Glasgow)

The great work that Ragdolls UK do has provided hope for thousands across the UK who have Turner’s Syndrome as well as their families.

Jenna Waithe (Clydebank)

Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska

Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…

Pet Therapy; by Tetyana Pravytska

Although the great assistance of animals is known for centuries, animal- assisted interventions have not received enough attention from researchers. Even as the number of studies grow, showing therapeutic potential…

Spotlight on Genetic Disorders

Spotlight on Cystic Fibrosis; by Alisha Malik

27 Sep 201727 Sep 2017

Genetic disorders can be caused when a mutation (a random and spontaneous change in the structure of a gene) occurs in a single gene. However, most of these mutations can…

Spotlight on Osteoperosis Imperfecta; by Gemma Bryant

26 Sep 201726 Sep 2017

I was inspired to write this article as a result of realising that if it were not for a couple of friends who happen to have osteogenesis imperfecta (OI), I…

Let’s tell the World!

14 Sep 201726 Sep 2017

When Ragdolls UK was founded we made it our mission to bring awareness of Turner's Syndrome to as many people as we could. It is a condition that occurs in…

Ragdolls UK Projects…

TS Girls Unite; By Tracey Connelly

28 Aug 201726 Sep 2017

I was having a chat recently with Kriss Fearnon of De Montfort University who is conducting research with TS girls and their reproductive decisions. This is one of the most…

Getting the Info you Need: By Anne Lilt

1 Aug 201726 Sep 2017

We are so pleased to see our website up and running with some new changes. We hope you can take the time to check it out. The site features some…

Ragdolls UK Projects…

Small but Mighty; by Tracey Connelly

24 Jul 201726 Sep 2017

When businesses are built from the ground up it can be a difficult and trying journey. When it is a charity the odds you are up against can be near…

Ragdolls UK Projects

Helping Turner’s Syndrome girls achieve their full potential

27 Jun 201726 Sep 2017

Carrying a genetic disorder can be a scary experience. It can leave the sufferer feeling isolated and lonely. We at Ragdolls UK know this only too well and strive to…

Turner’s Syndrome and rare diseases; By Alisha Malik

20 Jun 201726 Sep 2017

1 in 3 young children with rare and genetic diseases will not live to see their 5th birthday. (REF: globalgenes.org) 5 babies are born with Cystic Fibrosis and 2 sufferer…

TS and reproductive decisions; Kriss Fearnon

6 Jun 201726 Sep 2017

My name is Kriss Fearon and I’m based at the Centre for Reproduction Research at De Montfort University in Leicester. My research is about reproductive decision making in the context…

GoRaise and help Ragdolls UK; by Edita Collins

5 Jun 201726 Sep 2017

Fundraising nowadays requires a lot of thought, effort and determination. Few people enjoy being stopped in the street and asked for charitable donations. We believe that everyone should feel good…

A message of Hope; by Anna J

9 May 20176 Jun 2017

Our mission is to help as many girls with Turner's Syndrome as possible by linking them to the support they need. Whilst there is some help out their for parents…

The Turner’s Syndrome Health Check

21 Mar 201721 Mar 2017

Being a Turner's girl means that it is a must that you keep a regular check on your heart, kidneys and reproductive system throughout your life. It's not pretty but…

The Blog that Could; by Tracey Connelly

20 Mar 20176 Jun 2017

Ragdolls UK set out to bring comfort, encouragement and up to date relevant information to those who suffer from genetic disorders. A huge part of this is by keeping our…

Ways to Help

2 Mar 20176 Jun 2017

Helping a charity can come in many different forms. One off Donations This is a great way to show your support. Donations large and small go a long way towards…

A Girl On A Mission; by Melissa Jayne Williams

12 Jan 201722 Jun 2017

My name is Melissa and I have Turner's Syndrome. This a chromosomal condition that affects 1 in 2,500 girls. I want to be able raise as much money as I…

Ragdolls UK Projects

Have Your Say; by Tracey Connelly

10 Jan 20176 Jun 2017

I am very proud to say there are a lot of things that make Ragdolls UK unique as a charity. We are blessed with a team who are not only…

Three years on a mission!

9 Jan 201722 Jun 2017

December marked the third anniversary for Ragdolls UK and in a comparatively short space of time I am pleased to say we have achieved so much. Thousands of patients, families…

Teaching by Television; by Gemma Bryant

28 Nov 201623 Jan 2017

Getting Taught by Television: The Value of Television Drama in the Education of Genetic Disorders It’s strange where thoughts can lead while working on a blog. I’ve said before that…