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Welcome to the Ragdolls UK Charity Blog

Helping girls with Turner's Syndrome achieve their full potential.

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Tag: Awareness

Awareness

Chatting TS with Ellen Dingizian

30 Mar 2021
A while back I had the opportunity to have a chat with a lovely TS sister, Ellen. It was such a great experience being able to share our stories, discuss…
Awareness

My TS Story by Chanelle Pepin

27 Aug 20201 Sep 2020
My Turner Syndrome Story.   My diagnosis  I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories

Body Image in Turner’s Syndrome

17 Mar 2020
Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness…

The I word by Tracey Connelly

24 Jan 202024 Jan 2020
It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…
Awareness…

Do You (Really) Know Me? by Tracey Connelly

17 Sep 201917 Sep 2019
"You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness…

My TS Story – Tracey Connelly

26 Mar 201926 Mar 2019
Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Awareness…

Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska

3 Oct 2017
Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…
Spotlight on Genetic Disorders

Spotlight on Cystic Fibrosis; by Alisha Malik

27 Sep 201727 Sep 2017
Genetic disorders can be caused when a mutation (a random and spontaneous change in the structure of a gene) occurs in a single gene. However, most of these mutations can…
Updates

Getting the Info you Need: By Anne Lilt

1 Aug 201726 Sep 2017
We are so pleased to see our website up and running with some new changes. We hope you can take the time to check it out. The site features some…
Awareness…

A Girl On A Mission; by Melissa Jayne Williams

12 Jan 201722 Jun 2017
My name is Melissa and I have Turner's Syndrome. This a chromosomal condition that affects 1 in 2,500 girls. I want to be able raise as much money as I…
Updates

Profile on Tracey Connelly aka Vivika Widow; by Emily Toland

12 Apr 20166 Jun 2017
Receiving a “stern warning” from the United States Government is enough to throw most people off their stride. Tracey Connelly however is unstoppable when it comes to achieving her goals.…
Awareness

Great news for the scientific community!

17 Dec 201423 Jan 2017
Although our support is generally towards genetic disorders we are very excited to bring this information to the page. This is great news for sufferers of Parkinsons Disease and the…
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