Awareness My TS Story by Chanelle Pepin 27 Aug 20201 Sep 2020 My Turner Syndrome Story. My diagnosis I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories Body Image in Turner’s Syndrome 17 Mar 2020 Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness… Do You (Really) Know Me? by Tracey Connelly 17 Sep 201917 Sep 2019 "You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Uncategorized We are our a own Normal by Nicole Hawley 1 Jan 20191 Jan 2019 Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…
Awareness… Turner’s Syndrome and Us; by Racheal Chapman 16 Oct 2017 t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness… Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska 6 Oct 20176 Oct 2017 In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave birth to her much wanted son. Her happiness faded away very soon…
Awareness… Autism Spectrum Disorder and Dance Therapy; by Katerina Vasakou 5 Oct 20175 Oct 2017 Body movement therapy approaches support the view that the non-verbal interaction components and body mechanisms of people with autism should be taken strongly into consideration when working in therapeutic and…
Awareness… Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska 3 Oct 2017 Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…
Awareness… Pet Therapy; by Tetyana Pravytska 2 Oct 2017 Although the great assistance of animals is known for centuries, animal- assisted interventions have not received enough attention from researchers. Even as the number of studies grow, showing therapeutic potential…
Awareness… Spotlight on Osteoperosis Imperfecta; by Gemma Bryant 26 Sep 201726 Sep 2017 I was inspired to write this article as a result of realising that if it were not for a couple of friends who happen to have osteogenesis imperfecta (OI), I…
Fundraising Ways to Help 2 Mar 20176 Jun 2017 Helping a charity can come in many different forms. One off Donations This is a great way to show your support. Donations large and small go a long way towards…
Updates Three years on a mission! 9 Jan 201722 Jun 2017 December marked the third anniversary for Ragdolls UK and in a comparatively short space of time I am pleased to say we have achieved so much. Thousands of patients, families…
Fundraising… The charitable spirit of Craigholme 10 Nov 20166 Jun 2017 We would like to offer a wholehearted thank you to the pupils and staff of Craigholme School in Glasgow who have chosen Ragdolls UK as their charity of choice for…
Fundraising… Visiting Craigholme High School; By Tracey Connelly 3 Nov 20166 Jun 2017 Craigholme School for girls in Glasgow has chosen Ragdolls UK as their charity of choice for their annual fundraising efforts and we couldn't be more pleased. My colleague Emma and…
Awareness… Genetic Disorders: The Early Stages; by Paige Atkins 4 Oct 201623 Jan 2017 Identical twins help to understand the beginning stages of genetic disorders A detailed study of the first step in gene expression will help doctors and researchers better understand underlying variables…
Fundraising Putting the Fun in Fundraising; by Gemma Bryant 14 Sep 201623 Jan 2017 Fundraising is vital for any charity. Not only does it mean they have funds to continue with their work, it also raises the profile of the organisation that hopefully makes…
Fundraising The Kindness of Strangers; By Stacey Bradley 31 Aug 20166 Jun 2017 "I have always depended on the kindness of strangers," said Blanche Dubois. Each charity sets out on its own mission but in order to achieve that they require the help…
Awareness… Spotlight on Turner’s Syndrome; by Alice Winters 5 Jul 201623 Jan 2017 What is a genetic disorder? Well each of us are made of a unique combination DNA molecules which in turn determines lots of things about us like hair colour, eye…
Ragdolls UK Projects… WHAT’S IN A SUPPORT GROUP? ; by Amy Allan 17 May 20166 Jun 2017 One of the main focuses of Ragdolls UK in 2016 has been the building of support groups as far and wide as possible. Main cities such as Aberdeen, Dundee, Glasgow…
Updates Profile on Tracey Connelly aka Vivika Widow; by Emily Toland 12 Apr 20166 Jun 2017 Receiving a “stern warning” from the United States Government is enough to throw most people off their stride. Tracey Connelly however is unstoppable when it comes to achieving her goals.…
