Awareness TS and gender 2 May 2023 There has been a lot of discussion lately about TS and it only occurring in females. The National Organisation for Rare Disorders describes, “Only females are affected by Turner syndrome,…
Awareness… The Big Question by Alison Harvey 11 Apr 2023 As TS women we face a lot of extra challenges. There are often a host of specialists to see, health checks to make and rights we have to advocate. It's…
Ragdolls UK Projects To tell a story 21 Mar 202321 Mar 2023 As part of our pledge to support TS girls and their families achieve their full potential we are currently working with the lovely Annelie N in compiling a book on…
Awareness… Taken Seriously by Tracey Connelly 14 Mar 2023 Talking to a group of young TS women lately there was an issue raised that I believe is worth opening for discussion. There was a consensus within the group that…
Uncategorized million steps challenge 10 Jan 2023 The new year brings new horizons and with that in mind we are looking to make this year the best yet. With that in mind we are excited to have…
Awareness Play to your strengths by Annelie N 30 Nov 2021 When I was younger, I wanted nothing more than to be able to run as fast as my sister, play volleyball as well as she could, to play the piano…
Awareness My TS Story by Chanelle Pepin 27 Aug 20201 Sep 2020 My Turner Syndrome Story. My diagnosis I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories Body Image in Turner’s Syndrome 17 Mar 2020 Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness… Do You (Really) Know Me? by Tracey Connelly 17 Sep 201917 Sep 2019 "You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Uncategorized We are our a own Normal by Nicole Hawley 1 Jan 20191 Jan 2019 Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…
Awareness… Turner’s Syndrome and Us; by Racheal Chapman 16 Oct 2017 t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness… Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska 6 Oct 20176 Oct 2017 In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave birth to her much wanted son. Her happiness faded away very soon…
Awareness… Autism Spectrum Disorder and Dance Therapy; by Katerina Vasakou 5 Oct 20175 Oct 2017 Body movement therapy approaches support the view that the non-verbal interaction components and body mechanisms of people with autism should be taken strongly into consideration when working in therapeutic and…
Awareness… Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska 3 Oct 2017 Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…
Awareness… Pet Therapy; by Tetyana Pravytska 2 Oct 2017 Although the great assistance of animals is known for centuries, animal- assisted interventions have not received enough attention from researchers. Even as the number of studies grow, showing therapeutic potential…
Awareness… Spotlight on Osteoperosis Imperfecta; by Gemma Bryant 26 Sep 201726 Sep 2017 I was inspired to write this article as a result of realising that if it were not for a couple of friends who happen to have osteogenesis imperfecta (OI), I…
Fundraising Ways to Help 2 Mar 201710 Jan 2023 Helping a charity can come in many different forms: As a small charity financial support is greatly appreciated in order for us to continue providing what help we can to…
Updates Three years on a mission! 9 Jan 201722 Jun 2017 December marked the third anniversary for Ragdolls UK and in a comparatively short space of time I am pleased to say we have achieved so much. Thousands of patients, families…
Fundraising… The charitable spirit of Craigholme 10 Nov 20166 Jun 2017 We would like to offer a wholehearted thank you to the pupils and staff of Craigholme School in Glasgow who have chosen Ragdolls UK as their charity of choice for…
Fundraising… Visiting Craigholme High School; By Tracey Connelly 3 Nov 20166 Jun 2017 Craigholme School for girls in Glasgow has chosen Ragdolls UK as their charity of choice for their annual fundraising efforts and we couldn't be more pleased. My colleague Emma and…
Welcome to the Ragdolls UK Charity Blog 