Awareness… A Day that Changes Our World by Annelie N 11 Oct 202128 Nov 2021 Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…
Awareness… Do You (Really) Know Me? by Tracey Connelly 17 Sep 201917 Sep 2019 "You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness… My TS Story – Tracey Connelly 26 Mar 201926 Mar 2019 Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Awareness… What is Turner’s Syndrome (A Handy Video Guide) 21 Mar 201821 Mar 2018 For every girl and woman with Turner's Syndrome we support there are several more across the world who have never heard of the condition. Despite occurring in about 1 in…
Awareness… Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska 6 Oct 20176 Oct 2017 In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave birth to her much wanted son. Her happiness faded away very soon…
Awareness… Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska 3 Oct 2017 Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…
Volunteers The Blog that Could; by Tracey Connelly 20 Mar 20176 Jun 2017 Ragdolls UK set out to bring comfort, encouragement and up to date relevant information to those who suffer from genetic disorders. A huge part of this is by keeping our…
Awareness… A Girl On A Mission; by Melissa Jayne Williams 12 Jan 201722 Jun 2017 My name is Melissa and I have Turner's Syndrome. This a chromosomal condition that affects 1 in 2,500 girls. I want to be able raise as much money as I…
Ragdolls UK Projects Have Your Say; by Tracey Connelly 10 Jan 20176 Jun 2017 I am very proud to say there are a lot of things that make Ragdolls UK unique as a charity. We are blessed with a team who are not only…
Updates Three years on a mission! 9 Jan 201722 Jun 2017 December marked the third anniversary for Ragdolls UK and in a comparatively short space of time I am pleased to say we have achieved so much. Thousands of patients, families…
Awareness Teaching by Television; by Gemma Bryant 28 Nov 201623 Jan 2017 Getting Taught by Television: The Value of Television Drama in the Education of Genetic Disorders It’s strange where thoughts can lead while working on a blog. I’ve said before that…
Fundraising… The charitable spirit of Craigholme 10 Nov 20166 Jun 2017 We would like to offer a wholehearted thank you to the pupils and staff of Craigholme School in Glasgow who have chosen Ragdolls UK as their charity of choice for…
Fundraising… Visiting Craigholme High School; By Tracey Connelly 3 Nov 20166 Jun 2017 Craigholme School for girls in Glasgow has chosen Ragdolls UK as their charity of choice for their annual fundraising efforts and we couldn't be more pleased. My colleague Emma and…
Volunteers Volunteer Opportunities 25 Oct 20166 Jun 2017 Visit our website to find more about the exciting volunteer opportunities we have available! All time and effort donated to our cause is greatly appreciated.
Awareness… Genetic Disorders: The Early Stages; by Paige Atkins 4 Oct 201623 Jan 2017 Identical twins help to understand the beginning stages of genetic disorders A detailed study of the first step in gene expression will help doctors and researchers better understand underlying variables…
Fundraising Putting the Fun in Fundraising; by Gemma Bryant 14 Sep 201623 Jan 2017 Fundraising is vital for any charity. Not only does it mean they have funds to continue with their work, it also raises the profile of the organisation that hopefully makes…
Awareness… Spotlight on Turner’s Syndrome; by Alice Winters 5 Jul 201623 Jan 2017 What is a genetic disorder? Well each of us are made of a unique combination DNA molecules which in turn determines lots of things about us like hair colour, eye…
Ragdolls UK Projects… WHAT’S IN A SUPPORT GROUP? ; by Amy Allan 17 May 20166 Jun 2017 One of the main focuses of Ragdolls UK in 2016 has been the building of support groups as far and wide as possible. Main cities such as Aberdeen, Dundee, Glasgow…
Updates Profile on Tracey Connelly aka Vivika Widow; by Emily Toland 12 Apr 20166 Jun 2017 Receiving a “stern warning” from the United States Government is enough to throw most people off their stride. Tracey Connelly however is unstoppable when it comes to achieving her goals.…
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