Awareness TS and gender 2 May 2023 There has been a lot of discussion lately about TS and it only occurring in females. The National Organisation for Rare Disorders describes, “Only females are affected by Turner syndrome,…
Awareness… The Big Question by Alison Harvey 11 Apr 2023 As TS women we face a lot of extra challenges. There are often a host of specialists to see, health checks to make and rights we have to advocate. It's…
Awareness… Taken Seriously by Tracey Connelly 14 Mar 2023 Talking to a group of young TS women lately there was an issue raised that I believe is worth opening for discussion. There was a consensus within the group that…
Uncategorized million steps challenge 10 Jan 2023 The new year brings new horizons and with that in mind we are looking to make this year the best yet. With that in mind we are excited to have…
Uncategorized At Risk by Annelie N 24 Oct 2022 … Is every one of us,And diagnosed as terminal the instant we are born, Few tough realize their fate,Few of us can cope,With reading in their cards,Of risks and doom…
Uncategorized The Road is Never-Ending by Jyoti Upadhyay 21 Mar 2022 Written 23/7/2019 I am pedaling till my last breath,To Reach my destiny;After a while I took a pause, to dry my sweat;But, everyone is running towards their destiny,And I too started pedaling again,But,…
Awareness… A Day that Changes Our World by Annelie N 11 Oct 202128 Nov 2021 Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…
Fundraising Fundraising to support girl children with Turner’s syndrome by Avijita Kharel 12 May 202112 May 2021 I am a person who loves all forms of life. I have huge concern for social issues. I do my best to be mindful of my own impact in the…
Awareness… Do You (Really) Know Me? by Tracey Connelly 17 Sep 201917 Sep 2019 "You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness… My TS Story – Tracey Connelly 26 Mar 201926 Mar 2019 Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Awareness… A little support makes a huge difference! 21 Aug 2018 Have you heard of Turner's Syndrome? It occurs in 1 in about 2500 girls and women across the world and yet there are still many who haven't heard of it.…
Awareness A World of Information 6 Mar 20186 Mar 2018 We are gifted with being able to find out a whole host of information at our finger tips and yet despite the speed of this information high way there are…
Awareness… Turner’s Syndrome and Us; by Racheal Chapman 16 Oct 2017 t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness… Too Many Chromosomes Spoil the Broth; by Faye Price 12 Oct 201712 Oct 2017 This can certainly be the case for a minority of unborn babies. Whilst many of our womb bound children are tucked away fully formed, developing that much – loved ability…
Awareness… Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska 6 Oct 20176 Oct 2017 In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave birth to her much wanted son. Her happiness faded away very soon…
Awareness… Autism Spectrum Disorder and Dance Therapy; by Katerina Vasakou 5 Oct 20175 Oct 2017 Body movement therapy approaches support the view that the non-verbal interaction components and body mechanisms of people with autism should be taken strongly into consideration when working in therapeutic and…
Awareness… Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska 3 Oct 2017 Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…
Awareness… Pet Therapy; by Tetyana Pravytska 2 Oct 2017 Although the great assistance of animals is known for centuries, animal- assisted interventions have not received enough attention from researchers. Even as the number of studies grow, showing therapeutic potential…
Spotlight on Genetic Disorders Spotlight on Cystic Fibrosis; by Alisha Malik 27 Sep 201727 Sep 2017 Genetic disorders can be caused when a mutation (a random and spontaneous change in the structure of a gene) occurs in a single gene. However, most of these mutations can…
Awareness… Spotlight on Osteoperosis Imperfecta; by Gemma Bryant 26 Sep 201726 Sep 2017 I was inspired to write this article as a result of realising that if it were not for a couple of friends who happen to have osteogenesis imperfecta (OI), I…
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