Skip to content
Welcome to the Ragdolls UK Charity Blog

Welcome to the Ragdolls UK Charity Blog

Helping girls with Turner's Syndrome achieve their full potential.

Search
  • Ragdolls UK Projects
  • Awareness
    • Spotlight on Genetic Disorders
    • The Science Bit
    • Helpful Info
  • Fundraising
  • Volunteers
  • Updates
  • Contact Us

Tag: ragdolls uk charity

Awareness

My TS Story by Chanelle Pepin

27 Aug 20201 Sep 2020
My Turner Syndrome Story.   My diagnosis  I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories

Body Image in Turner’s Syndrome

17 Mar 2020
Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness…

The I word by Tracey Connelly

24 Jan 202024 Jan 2020
It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…
Awareness…

Do You (Really) Know Me? by Tracey Connelly

17 Sep 201917 Sep 2019
"You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness…

Reading Expressions (NVLD in Turner’s Syndrome)

22 Aug 201922 Aug 2019
Non verbal learning disorder (NVLD) in girls and women with Turner's Syndrome can be a pressing issue, especially in today's fast past paced world where interaction is key and interactions…
Uncategorized

We are our a own Normal by Nicole Hawley

1 Jan 20191 Jan 2019
Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…
Awareness…

A little support makes a huge difference!

21 Aug 2018
Have you heard of Turner's Syndrome? It occurs in 1 in about 2500 girls and women across the world and yet there are still many who haven't heard of it.…
Awareness…

What is Turner’s Syndrome (A Handy Video Guide)

21 Mar 201821 Mar 2018
For every girl and woman with Turner's Syndrome we support there are several more across the world who have never heard of the condition. Despite occurring in about 1 in…
Awareness

A World of Information

6 Mar 20186 Mar 2018
We are gifted with being able to find out a whole host of information at our finger tips and yet despite the speed of this information high way there are…
Ragdolls UK Projects…

Happy New Year from Ragdolls UK

3 Jan 20183 Jan 2018
The new year is an exciting time for us because it gives us the opportunity to look ahead and start working towards any fundraising events we may have throughout the…
Awareness…

Turner’s Syndrome and Us; by Racheal Chapman

16 Oct 2017
t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness…

Too Many Chromosomes Spoil the Broth; by Faye Price

12 Oct 201712 Oct 2017
This can certainly be the case for a minority of unborn babies. Whilst many of our womb bound children are tucked away fully formed, developing that much – loved ability…
Awareness…

Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska

6 Oct 20176 Oct 2017
In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave  birth to her much wanted son. Her happiness faded away very soon…
Awareness…

Autism Spectrum Disorder and Dance Therapy; by Katerina Vasakou

5 Oct 20175 Oct 2017
Body movement therapy approaches support the view that the non-verbal interaction components and body mechanisms of people with autism should be taken strongly into consideration when working in therapeutic and…
Awareness…

Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska

3 Oct 2017
Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…
Awareness…

Pet Therapy; by Tetyana Pravytska

2 Oct 2017
Although the great assistance of animals is known for centuries, animal- assisted interventions have not received enough attention from researchers. Even as the number of studies grow, showing therapeutic potential…
Spotlight on Genetic Disorders

Spotlight on Cystic Fibrosis; by Alisha Malik

27 Sep 201727 Sep 2017
Genetic disorders can be caused when a mutation (a random and spontaneous change in the structure of a gene) occurs in a single gene. However, most of these mutations can…
Awareness…

Spotlight on Osteoperosis Imperfecta; by Gemma Bryant

26 Sep 201726 Sep 2017
I was inspired to write this article as a result of realising that if it were not for a couple of friends who happen to have osteogenesis imperfecta (OI), I…
Awareness…

Let’s tell the World!

14 Sep 201726 Sep 2017
When Ragdolls UK was founded we made it our mission to bring awareness of Turner's Syndrome to as many people as we could. It is a condition that occurs in…
Ragdolls UK Projects…

TS Girls Unite; By Tracey Connelly

28 Aug 201726 Sep 2017
I was having a chat recently with Kriss Fearnon of De Montfort University who is conducting research with TS girls and their reproductive decisions. This is one of the most…

Posts navigation

Older posts
Follow Welcome to the Ragdolls UK Charity Blog on WordPress.com

Like us on Facebook! :-)

Like us on Facebook! :-)

Follow us on Twitter :-)

My Tweets
Charity Day - Junior 3
Charity Day - Junior 6
cheque collection
J4 Charity Day
WRM_2016__Charity_02
WRM_2016__Charity_03
Website Powered by WordPress.com.
Cancel

 
Loading Comments...
Comment
    ×