Awareness… Spotlight on Duchenne Muscular Dystrophy; by Tetyana Pravytska 3 Oct 2017 Duchenne muscular dystrophy(DMD) is a rare and inhereted genetic condition . It affects as many as one in 3500 boys. In 1986, researchers discovered the faulty gene on the X-chromosome…
Awareness… Pet Therapy; by Tetyana Pravytska 2 Oct 2017 Although the great assistance of animals is known for centuries, animal- assisted interventions have not received enough attention from researchers. Even as the number of studies grow, showing therapeutic potential…
Spotlight on Genetic Disorders Spotlight on Cystic Fibrosis; by Alisha Malik 27 Sep 201727 Sep 2017 Genetic disorders can be caused when a mutation (a random and spontaneous change in the structure of a gene) occurs in a single gene. However, most of these mutations can…
Awareness… Spotlight on Osteoperosis Imperfecta; by Gemma Bryant 26 Sep 201726 Sep 2017 I was inspired to write this article as a result of realising that if it were not for a couple of friends who happen to have osteogenesis imperfecta (OI), I…
Awareness… Let’s tell the World! 14 Sep 201726 Sep 2017 When Ragdolls UK was founded we made it our mission to bring awareness of Turner's Syndrome to as many people as we could. It is a condition that occurs in…
Ragdolls UK Projects… TS Girls Unite; By Tracey Connelly 28 Aug 201726 Sep 2017 I was having a chat recently with Kriss Fearnon of De Montfort University who is conducting research with TS girls and their reproductive decisions. This is one of the most…
Updates Getting the Info you Need: By Anne Lilt 1 Aug 201726 Sep 2017 We are so pleased to see our website up and running with some new changes. We hope you can take the time to check it out. The site features some…
Ragdolls UK Projects… Small but Mighty; by Tracey Connelly 24 Jul 201726 Sep 2017 When businesses are built from the ground up it can be a difficult and trying journey. When it is a charity the odds you are up against can be near…
Ragdolls UK Projects Helping Turner’s Syndrome girls achieve their full potential 27 Jun 201726 Sep 2017 Carrying a genetic disorder can be a scary experience. It can leave the sufferer feeling isolated and lonely. We at Ragdolls UK know this only too well and strive to…
Awareness Turner’s Syndrome and rare diseases; By Alisha Malik 20 Jun 201726 Sep 2017 1 in 3 young children with rare and genetic diseases will not live to see their 5th birthday. (REF: globalgenes.org) 5 babies are born with Cystic Fibrosis and 2 sufferer…
Awareness… TS and reproductive decisions; Kriss Fearnon 6 Jun 201726 Sep 2017 My name is Kriss Fearon and I’m based at the Centre for Reproduction Research at De Montfort University in Leicester. My research is about reproductive decision making in the context…
Fundraising GoRaise and help Ragdolls UK; by Edita Collins 5 Jun 201726 Sep 2017 Fundraising nowadays requires a lot of thought, effort and determination. Few people enjoy being stopped in the street and asked for charitable donations. We believe that everyone should feel good…
Awareness… A Girl On A Mission; by Melissa Jayne Williams 12 Jan 201722 Jun 2017 My name is Melissa and I have Turner's Syndrome. This a chromosomal condition that affects 1 in 2,500 girls. I want to be able raise as much money as I…
Updates Three years on a mission! 9 Jan 201722 Jun 2017 December marked the third anniversary for Ragdolls UK and in a comparatively short space of time I am pleased to say we have achieved so much. Thousands of patients, families…
Awareness… Living with Turner’s Syndrome; by Tracey Connelly 7 Jan 201622 Jun 2017 I had known from an early age that I was a Turner's girl and visiting the hospitals regularly, the doctors and nurses making such a fuss over me I began…
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