Awareness TS and gender 2 May 2023 There has been a lot of discussion lately about TS and it only occurring in females. The National Organisation for Rare Disorders describes, “Only females are affected by Turner syndrome,…
Awareness… The Big Question by Alison Harvey 11 Apr 2023 As TS women we face a lot of extra challenges. There are often a host of specialists to see, health checks to make and rights we have to advocate. It's…
Ragdolls UK Projects To tell a story 21 Mar 202321 Mar 2023 As part of our pledge to support TS girls and their families achieve their full potential we are currently working with the lovely Annelie N in compiling a book on…
Awareness… Taken Seriously by Tracey Connelly 14 Mar 2023 Talking to a group of young TS women lately there was an issue raised that I believe is worth opening for discussion. There was a consensus within the group that…
Uncategorized million steps challenge 10 Jan 2023 The new year brings new horizons and with that in mind we are looking to make this year the best yet. With that in mind we are excited to have…
Awareness Turner’s Syndrome and mental health by Hayley Watson 22 Nov 2022 In our modern day and age the issue of mental health has come more the forefront. As we fight to eliminate the stigma surrounding it more and more discussions are…
Uncategorized At Risk by Annelie N 24 Oct 2022 … Is every one of us,And diagnosed as terminal the instant we are born, Few tough realize their fate,Few of us can cope,With reading in their cards,Of risks and doom…
Uncategorized The Road is Never-Ending by Jyoti Upadhyay 21 Mar 2022 Written 23/7/2019 I am pedaling till my last breath,To Reach my destiny;After a while I took a pause, to dry my sweat;But, everyone is running towards their destiny,And I too started pedaling again,But,…
Uncategorized Going Live! By Tracey Connelly 13 Jan 2022 I hope you are all having a wonderful 2022 so far and I would just like to take a moment to thank everyone who has supported us through some of…
Awareness Play to your strengths by Annelie N 30 Nov 2021 When I was younger, I wanted nothing more than to be able to run as fast as my sister, play volleyball as well as she could, to play the piano…
Awareness… A Day that Changes Our World by Annelie N 11 Oct 202128 Nov 2021 Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…
Fundraising Fundraising to support girl children with Turner’s syndrome by Avijita Kharel 12 May 202112 May 2021 I am a person who loves all forms of life. I have huge concern for social issues. I do my best to be mindful of my own impact in the…
Awareness Chatting TS with Ellen Dingizian 30 Mar 2021 A while back I had the opportunity to have a chat with a lovely TS sister, Ellen. It was such a great experience being able to share our stories, discuss…
Awareness My TS Story by Chanelle Pepin 27 Aug 20201 Sep 2020 My Turner Syndrome Story. My diagnosis I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories Body Image in Turner’s Syndrome 17 Mar 2020 Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness… The I word by Tracey Connelly 24 Jan 202024 Jan 2020 It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…
Awareness… Do You (Really) Know Me? by Tracey Connelly 17 Sep 201917 Sep 2019 "You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness… Reading Expressions (NVLD in Turner’s Syndrome) 22 Aug 201922 Aug 2019 Non verbal learning disorder (NVLD) in girls and women with Turner's Syndrome can be a pressing issue, especially in today's fast past paced world where interaction is key and interactions…
Awareness… My TS Story – Tracey Connelly 26 Mar 201926 Mar 2019 Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Uncategorized We are our a own Normal by Nicole Hawley 1 Jan 20191 Jan 2019 Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…
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