Uncategorized The Road is Never-Ending by Jyoti Upadhyay 21 Mar 2022 Written 23/7/2019 I am pedaling till my last breath,To Reach my destiny;After a while I took a pause, to dry my sweat;But, everyone is running towards their destiny,And I too started pedaling again,But,…
Uncategorized Going Live! By Tracey Connelly 13 Jan 2022 I hope you are all having a wonderful 2022 so far and I would just like to take a moment to thank everyone who has supported us through some of…
Awareness Play to your strengths by Annelie N 30 Nov 2021 When I was younger, I wanted nothing more than to be able to run as fast as my sister, play volleyball as well as she could, to play the piano…
Awareness… A Day that Changes Our World by Annelie N 11 Oct 202128 Nov 2021 Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…
Fundraising Fundraising to support girl children with Turner’s syndrome by Avijita Kharel 12 May 202112 May 2021 I am a person who loves all forms of life. I have huge concern for social issues. I do my best to be mindful of my own impact in the…
Awareness Chatting TS with Ellen Dingizian 30 Mar 2021 A while back I had the opportunity to have a chat with a lovely TS sister, Ellen. It was such a great experience being able to share our stories, discuss…
Awareness My TS Story by Chanelle Pepin 27 Aug 20201 Sep 2020 My Turner Syndrome Story. My diagnosis I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories Body Image in Turner’s Syndrome 17 Mar 2020 Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness… The I word by Tracey Connelly 24 Jan 202024 Jan 2020 It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…
Awareness… Do You (Really) Know Me? by Tracey Connelly 17 Sep 201917 Sep 2019 "You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness… Reading Expressions (NVLD in Turner’s Syndrome) 22 Aug 201922 Aug 2019 Non verbal learning disorder (NVLD) in girls and women with Turner's Syndrome can be a pressing issue, especially in today's fast past paced world where interaction is key and interactions…
Awareness… My TS Story – Tracey Connelly 26 Mar 201926 Mar 2019 Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Uncategorized We are our a own Normal by Nicole Hawley 1 Jan 20191 Jan 2019 Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…
Awareness… A little support makes a huge difference! 21 Aug 2018 Have you heard of Turner's Syndrome? It occurs in 1 in about 2500 girls and women across the world and yet there are still many who haven't heard of it.…
Awareness A World of Information 6 Mar 20186 Mar 2018 We are gifted with being able to find out a whole host of information at our finger tips and yet despite the speed of this information high way there are…
Ragdolls UK Projects… Happy New Year from Ragdolls UK 3 Jan 20183 Jan 2018 The new year is an exciting time for us because it gives us the opportunity to look ahead and start working towards any fundraising events we may have throughout the…
Awareness… Turner’s Syndrome and Us; by Racheal Chapman 16 Oct 2017 t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness… Too Many Chromosomes Spoil the Broth; by Faye Price 12 Oct 201712 Oct 2017 This can certainly be the case for a minority of unborn babies. Whilst many of our womb bound children are tucked away fully formed, developing that much – loved ability…
Awareness… Haemophilia: Improving Lifestyle with Exercise; by Tetyana Pravytska 6 Oct 20176 Oct 2017 In 1904, ten years later after her splendid wedding ceremony, Princess Alix of Hesse, Queen Victoria’s granddaughter, gave birth to her much wanted son. Her happiness faded away very soon…
Awareness… Autism Spectrum Disorder and Dance Therapy; by Katerina Vasakou 5 Oct 20175 Oct 2017 Body movement therapy approaches support the view that the non-verbal interaction components and body mechanisms of people with autism should be taken strongly into consideration when working in therapeutic and…
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