Awareness My TS Story by Chanelle Pepin 27 Aug 20201 Sep 2020 My Turner Syndrome Story. My diagnosis I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories Body Image in Turner’s Syndrome 17 Mar 2020 Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness… The I word by Tracey Connelly 24 Jan 202024 Jan 2020 It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…
Awareness… Do You (Really) Know Me? by Tracey Connelly 17 Sep 201917 Sep 2019 "You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness… Reading Expressions (NVLD in Turner’s Syndrome) 22 Aug 201922 Aug 2019 Non verbal learning disorder (NVLD) in girls and women with Turner's Syndrome can be a pressing issue, especially in today's fast past paced world where interaction is key and interactions…
Awareness… My TS Story – Tracey Connelly 26 Mar 201926 Mar 2019 Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Uncategorized We are our a own Normal by Nicole Hawley 1 Jan 20191 Jan 2019 Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…
Awareness… What is Turner’s Syndrome (A Handy Video Guide) 21 Mar 201821 Mar 2018 For every girl and woman with Turner's Syndrome we support there are several more across the world who have never heard of the condition. Despite occurring in about 1 in…
Awareness A World of Information 6 Mar 20186 Mar 2018 We are gifted with being able to find out a whole host of information at our finger tips and yet despite the speed of this information high way there are…
Awareness… Turner’s Syndrome and Us; by Racheal Chapman 16 Oct 2017 t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness… Let’s tell the World! 14 Sep 201726 Sep 2017 When Ragdolls UK was founded we made it our mission to bring awareness of Turner's Syndrome to as many people as we could. It is a condition that occurs in…
Ragdolls UK Projects… TS Girls Unite; By Tracey Connelly 28 Aug 201726 Sep 2017 I was having a chat recently with Kriss Fearnon of De Montfort University who is conducting research with TS girls and their reproductive decisions. This is one of the most…
Updates Getting the Info you Need: By Anne Lilt 1 Aug 201726 Sep 2017 We are so pleased to see our website up and running with some new changes. We hope you can take the time to check it out. The site features some…
Ragdolls UK Projects… Small but Mighty; by Tracey Connelly 24 Jul 201726 Sep 2017 When businesses are built from the ground up it can be a difficult and trying journey. When it is a charity the odds you are up against can be near…
Ragdolls UK Projects Helping Turner’s Syndrome girls achieve their full potential 27 Jun 201726 Sep 2017 Carrying a genetic disorder can be a scary experience. It can leave the sufferer feeling isolated and lonely. We at Ragdolls UK know this only too well and strive to…
Awareness Turner’s Syndrome and rare diseases; By Alisha Malik 20 Jun 201726 Sep 2017 1 in 3 young children with rare and genetic diseases will not live to see their 5th birthday. (REF: globalgenes.org) 5 babies are born with Cystic Fibrosis and 2 sufferer…
Awareness… TS and reproductive decisions; Kriss Fearnon 6 Jun 201726 Sep 2017 My name is Kriss Fearon and I’m based at the Centre for Reproduction Research at De Montfort University in Leicester. My research is about reproductive decision making in the context…
Fundraising Ways to Help 2 Mar 20176 Jun 2017 Helping a charity can come in many different forms. One off Donations This is a great way to show your support. Donations large and small go a long way towards…
Awareness… A Girl On A Mission; by Melissa Jayne Williams 12 Jan 201722 Jun 2017 My name is Melissa and I have Turner's Syndrome. This a chromosomal condition that affects 1 in 2,500 girls. I want to be able raise as much money as I…
Fundraising… The charitable spirit of Craigholme 10 Nov 20166 Jun 2017 We would like to offer a wholehearted thank you to the pupils and staff of Craigholme School in Glasgow who have chosen Ragdolls UK as their charity of choice for…
