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Welcome to the Ragdolls UK Charity Blog

Helping girls with Turner's Syndrome achieve their full potential.

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Tag: turner’s syndrome

Awareness

Turner’s Syndrome and mental health by Hayley Watson

22 Nov 2022
In our modern day and age the issue of mental health has come more the forefront. As we fight to eliminate the stigma surrounding it more and more discussions are…
Uncategorized

At Risk by Annelie N

24 Oct 2022
… Is every one of us,And diagnosed as terminal the instant we are born, Few tough realize their fate,Few of us can cope,With reading in their cards,Of risks and doom…
Uncategorized

Going Live! By Tracey Connelly

13 Jan 2022
I hope you are all having a wonderful 2022 so far and I would just like to take a moment to thank everyone who has supported us through some of…
Awareness

Play to your strengths by Annelie N

30 Nov 2021
When I was younger, I wanted nothing more than to be able to run as fast as my sister, play volleyball as well as she could, to play the piano…
Awareness…

A Day that Changes Our World by Annelie N

11 Oct 202128 Nov 2021
Imagine. You are going in for a routine prenatal ultrasound, and a doctor tells you, with a slight note of concern in his voice: “Something seems to be wrong. Please…
Fundraising

Fundraising to support girl children with Turner’s syndrome by Avijita Kharel

12 May 202112 May 2021
I am a person who loves all forms of life. I have huge concern for social issues. I do my best to be mindful of my own impact in the…
Awareness

My TS Story by Chanelle Pepin

27 Aug 20201 Sep 2020
My Turner Syndrome Story.   My diagnosis  I’m Chanelle, and I was diagnosed with Turner Syndrome in 1998 when I was eight years old. For quite a long time, my mother…
TS Stories

Body Image in Turner’s Syndrome

17 Mar 2020
Body image is a worry for a lot of women. This is especially true for women and girls with Turner’s Syndrome. Weight gain, physical attributes and general expectations thrown on…
Awareness…

The I word by Tracey Connelly

24 Jan 202024 Jan 2020
It's covered a lot in the Turner's Syndrome groups and forums but it is always going to be a hot button issue for most of the women with the condition…
Awareness…

Do You (Really) Know Me? by Tracey Connelly

17 Sep 201917 Sep 2019
"You don't look Turner's Syndrome." A comment I get a lot. Being mosaic I don't show all of the classic signs and those that I do show would go unrecognised…
Awareness…

Reading Expressions (NVLD in Turner’s Syndrome)

22 Aug 201922 Aug 2019
Non verbal learning disorder (NVLD) in girls and women with Turner's Syndrome can be a pressing issue, especially in today's fast past paced world where interaction is key and interactions…
Awareness…

My TS Story – Tracey Connelly

26 Mar 201926 Mar 2019
Recently I had the pleasure of connecting with the University of Warsaw via skype with the opportunity to share my story. It is amazing how modern technology allows us to…
Uncategorized

We are our a own Normal by Nicole Hawley

1 Jan 20191 Jan 2019
Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn't articulate why and my parents wouldn't talk…
Awareness…

What is Turner’s Syndrome (A Handy Video Guide)

21 Mar 201821 Mar 2018
For every girl and woman with Turner's Syndrome we support there are several more across the world who have never heard of the condition. Despite occurring in about 1 in…
Awareness

A World of Information

6 Mar 20186 Mar 2018
We are gifted with being able to find out a whole host of information at our finger tips and yet despite the speed of this information high way there are…
Awareness…

Turner’s Syndrome and Us; by Racheal Chapman

16 Oct 2017
t was a cool September day and we we’d decided to go for lunch. Normality was what was needed, a lunch date with my husband was perhaps the perfect opportunity…
Awareness…

Let’s tell the World!

14 Sep 201726 Sep 2017
When Ragdolls UK was founded we made it our mission to bring awareness of Turner's Syndrome to as many people as we could. It is a condition that occurs in…
Ragdolls UK Projects…

TS Girls Unite; By Tracey Connelly

28 Aug 201726 Sep 2017
I was having a chat recently with Kriss Fearnon of De Montfort University who is conducting research with TS girls and their reproductive decisions. This is one of the most…
Updates

Getting the Info you Need: By Anne Lilt

1 Aug 201726 Sep 2017
We are so pleased to see our website up and running with some new changes. We hope you can take the time to check it out. The site features some…
Ragdolls UK Projects…

Small but Mighty; by Tracey Connelly

24 Jul 201726 Sep 2017
When businesses are built from the ground up it can be a difficult and trying journey. When it is a charity the odds you are up against can be near…

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